Scoliosis - Anyone ever seek treatment or has kids .....
- Thread starter K2desoog
- Start date
K2desoog
New member
Shes 15 going on 16 (voice has not broken yet)
Cos we got poor service from the NUH specialist, we dont think he deserves more of our time or money.
Information was never forthcoming with the NUH doc (keeps it like a state secret)
In and out in less than 10 mins. When we entered the room, we were invisible to him.
No eye contact, no smile, not answering greeting, only speak when spoken to,
did some h/work and KKH has an alternative to bracing. He didnt tell us abt this.
so we want a second opinion too and OPTIONs.
Cos we got poor service from the NUH specialist, we dont think he deserves more of our time or money.
Information was never forthcoming with the NUH doc (keeps it like a state secret)
In and out in less than 10 mins. When we entered the room, we were invisible to him.
No eye contact, no smile, not answering greeting, only speak when spoken to,
did some h/work and KKH has an alternative to bracing. He didnt tell us abt this.
so we want a second opinion too and OPTIONs.
Jumpin'Jellybean
New member
Idk whether braces are absolutely neccesary, it is depending on the angle of the curve. I'm sixteen this year, i got 3 degrees left. So the visiting docs that come to school every year, they just said take care of your posture, be conscientious about it, don't slouch, sit upright, and it'll stabilize or shift back, cause for us, the spine haven't finish growing, so it's easier to bend out of place. That's what i heard, at least. Oh, by the way, my friend has about 5-7 degrees, they recommended him for checkup but brace wasn't neccesary yet.
Cheez
Moderator
We can observe, use braces, or operate. Use of brace depends on the angle and the progression, among other things. Depending in these factors, one can opt to just watch and wait or intervene. Braces has been shown in a number of large studies to be extremely effective. Because of the effectiveness, some recommends immediate bracing with a curve of 20-25 degrees without waiting for evidence of any curve progression. And it's also been shown that full-time bracing is more effective than part-time bracing - although the latter is also somewhat effective.
There are also study on electrical stimulation, although I believe a large study found it to be less effective than observation and bracing. I'm not sure with KKH has as an alternative.
You probably got an MO in NUH who has a bad day.
There are also study on electrical stimulation, although I believe a large study found it to be less effective than observation and bracing. I'm not sure with KKH has as an alternative.
You probably got an MO in NUH who has a bad day.
Jumpin'Jellybean
New member
=Cheez
Hi sir, do you work in the industry? Cause i was quite worried about my problem of 3 degrees, so i asked the nurse and she said 10 degrees is already somewhat bad already, definitely must wear braces...
Full time bracing is the most effective. The doctors recommend operations for students only if bracing if of very little help or if the person is in extreme pain, not sure about adults.
Hi sir, do you work in the industry? Cause i was quite worried about my problem of 3 degrees, so i asked the nurse and she said 10 degrees is already somewhat bad already, definitely must wear braces...
Full time bracing is the most effective. The doctors recommend operations for students only if bracing if of very little help or if the person is in extreme pain, not sure about adults.
sharker_93
New member
About the people there, I don't quite know much. I only know that my sister had her stuff done at SGH then.
But regarding the braces, I suppose it's only necessary if the curvature and angle is bad. BUT, if the people there tell you to make those braces, make sure that she wears it. MAKE SURE. Yeah, no matter how uncomfortable and troublesome it may be, ensure she wears it.
Cause I actually felt my sister's pain when I saw her went to surgery some 3 years ago. Now she has a metal 30cm plate with 16 screws attached to her backbone permanently and a pretty gruesome scar down her back. So, yeah.
Well, best of luck bro.
But regarding the braces, I suppose it's only necessary if the curvature and angle is bad. BUT, if the people there tell you to make those braces, make sure that she wears it. MAKE SURE. Yeah, no matter how uncomfortable and troublesome it may be, ensure she wears it.
Cause I actually felt my sister's pain when I saw her went to surgery some 3 years ago. Now she has a metal 30cm plate with 16 screws attached to her backbone permanently and a pretty gruesome scar down her back. So, yeah.
Well, best of luck bro.
K2desoog
New member
Tks for the kind thoughts sharker...
And sorry to hear about your sis.
She has 24 degree curvature to the right. At this point, braces are necessary to prevent it form curving any further. Not to correct it. Anything above 40 degrees warrants surgery. As I understand it, once the patient reaches puberty, the growth will slow down and things will have some form of normalcy.
But the thought of her doning this rigid TLSO/Boston brace 22++ hrs a day is saddening. So we did our homework.
Although it works, studies have shown that the growth of ribcage could be affected by the brace. Not to mention muscular atrophy. Moreover, adolescence period is when children feel most insecure and want acceptance by their peers. So psychologically (which is very imptnt to us) it will also have an effect. Because there are just some things you cant do (with your friends especially), fashionable clothes you cannot wear, sports... and the list goes on.
There is an option we are looking into which is available at KKH. Something new which allows the wearer free movement, its not rigid and nobody can tell when you have it on. We dont know how much it'll costs but being new, i'm certain it is 2 arms and a leg (and maybe an additional toe or two). BTW, a TLSO brace cost just an arm. Its uses straps and you'll look like a sky-diver when you have it on. We've read the case studies and are surpised that this option was not mentioned at SGH. Most quarters there have no good things to say abt this new brace tho. Its not proven-lah, wont work-lah, the TLSO brace is proven & most recommended -lah...etc.
But they dont offer it, so what do they know. Right?
Hearing ALL options before making any decisions would be the best all-round solution for both the physical & psychological well-being, so we've decided.
And no point in getting something which our child dont want to wear because she 'malu' and we have to force it on her. Even when she knows its really necessary... *Sigh*
And sorry to hear about your sis.
She has 24 degree curvature to the right. At this point, braces are necessary to prevent it form curving any further. Not to correct it. Anything above 40 degrees warrants surgery. As I understand it, once the patient reaches puberty, the growth will slow down and things will have some form of normalcy.
But the thought of her doning this rigid TLSO/Boston brace 22++ hrs a day is saddening. So we did our homework.
Although it works, studies have shown that the growth of ribcage could be affected by the brace. Not to mention muscular atrophy. Moreover, adolescence period is when children feel most insecure and want acceptance by their peers. So psychologically (which is very imptnt to us) it will also have an effect. Because there are just some things you cant do (with your friends especially), fashionable clothes you cannot wear, sports... and the list goes on.
There is an option we are looking into which is available at KKH. Something new which allows the wearer free movement, its not rigid and nobody can tell when you have it on. We dont know how much it'll costs but being new, i'm certain it is 2 arms and a leg (and maybe an additional toe or two). BTW, a TLSO brace cost just an arm. Its uses straps and you'll look like a sky-diver when you have it on. We've read the case studies and are surpised that this option was not mentioned at SGH. Most quarters there have no good things to say abt this new brace tho. Its not proven-lah, wont work-lah, the TLSO brace is proven & most recommended -lah...etc.
But they dont offer it, so what do they know. Right?
Hearing ALL options before making any decisions would be the best all-round solution for both the physical & psychological well-being, so we've decided.
And no point in getting something which our child dont want to wear because she 'malu' and we have to force it on her. Even when she knows its really necessary... *Sigh*
Last edited:
Cheez
Moderator
There are a lot of questions surrounding the consistency of the tension in TLSO (esp when the wearer is lying down). The newer brace you are mentioning may be the SpineCor Brace (or St Justine Brace - named after the hospital in Canada where it is developed). It's not as rigid as the traditional braces (ie TSLO, Milwaukee etc). I think it's based on elastic straps anchored on a pelvic corset. It's based on a dynamic elastic system instead of being rigid. And needless to say, it increases compliance and has less psychological impact than the rigid braces. Early studies seem to suggest that it's as effective as the traditional braces.
K2desoog
New member
Yup Cheeez.
Its SpineCor. Just didnt want to mention the name lest someone thinks I'm promoting it
A visit to their webpage is a real eye-opener (statistics, case studies ... etc)
We've got a visit already scheduled to KKH. So it'll be good to hear what they say & of course how much it'd set us back too
Has anyone any experience with SpineCor btw?
Its SpineCor. Just didnt want to mention the name lest someone thinks I'm promoting it
A visit to their webpage is a real eye-opener (statistics, case studies ... etc)
We've got a visit already scheduled to KKH. So it'll be good to hear what they say & of course how much it'd set us back too
Has anyone any experience with SpineCor btw?
Jumpin'Jellybean
New member
Whoa i'm overwhelmed by the influx of information.
Hahah, i thought all doctors were friends with each other so they could consult each other...
Hahah, i thought all doctors were friends with each other so they could consult each other...
Jumpin'Jellybean
New member
I see. Sounds very professional. PSLE grad sigining off..
K2desoog
New member
Well, I must say that we're very, very pleased with KKH.
Thank you KKH Clinic P if youre reading this
Everything & all that SGH was lacking, KKH dished-out beyond expections.
Our concerns and queries were thoroughly addressed as well.
We've decided on SpineCor.
Its not cheap ($2K up) as compared to the Boston brace ($400 ++) and are awaiting for an appointment date for 'fitting'.
Hmmm... time to sell me gear?
Thank you KKH Clinic P if youre reading this
Everything & all that SGH was lacking, KKH dished-out beyond expections.
Our concerns and queries were thoroughly addressed as well.
We've decided on SpineCor.
Its not cheap ($2K up) as compared to the Boston brace ($400 ++) and are awaiting for an appointment date for 'fitting'.
Hmmm... time to sell me gear?
crazyguy106
New member
All the best! I was attached to both SGH and NUH for Orthopaedics recently, care to message me which doctor you were referring to? The doctors that I were attached to never had such a problem. Though I did have some attitudes with this kind of problem.
When is the operation? Did they send your girl for physiotherapy before the operation? All the best for your girl. =)
When is the operation? Did they send your girl for physiotherapy before the operation? All the best for your girl. =)
Jumpin'Jellybean
New member
Congrats on finding a good solution...
Idiopathic Scoliosis: Non-Surgical Management Talk
1:30-2:30pm
19 June 2010 (Sat)
73 Tras St #02-01 079012
Call 6226 3632 ext 3
to reserve a seat
$5 per pax
http://Scoliosis.CoreConcepts.com.sg
1:30-2:30pm
19 June 2010 (Sat)
73 Tras St #02-01 079012
Call 6226 3632 ext 3
to reserve a seat
$5 per pax
http://Scoliosis.CoreConcepts.com.sg
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